Adhesions are a debilitating complication caused by abdominal surgery.
Adhesions are the body's natural defense against the gasses used and intrusion
of abdominal surgery. They grow on the abdominal wall and organs and anything
else they can find and create a binding force to keep everything together.
The problem is that they also can cause a lot of pain and can attach to
organs and squeeze them or pull them out of their normal place. Commonly,
the intestines can get strangled and blocked. In Tonya's case, all
of the above is true. I can't stand seeing her suffer so much on
a daily basis. She tries so hard to lead a normal life and take care of
me and our kids but she can barely get out of bed some days.
The following text is copied from the Adhesions.org Quilt and is the
story, in her own words, of how Tonya got adhesions and how it affects
her life today. The story was written for the Quilt, not for this
site, so references and other things may seem strange to you but I have
chosen to copy it here un-altered.
I am 36 years old. I had my first
and only child when I was almost 31. Little did I know
that this birth was to change my life forever.
The labor was a difficult one of many
complications and to make a long story short
I bled out and almost died. My OBGYN
actually had to pull the placenta out in order
to save my life and that's when I first got
all of my adhesions. The trauma from the birth
of my child set the ground floor that
has brought me to this site. Shortly after
my son was born, I began to feel pulling and
tearing pains from within. I had told my gyno
about this and was reassured that this
was normal due to the horrible complications
that I had suffered giving birth. I was put
on anti-depressants and told to go home and
it would be ok. The pain persisted and I
repeatedly was sent away sometimes with pain
meds, sometimes without. But it wasn't
until I went in for an exploratory laporoscopy
for a possible "appendicitis" and
possible "hernia" did they find that my insides
were covered in what the doctor called
"cobwebs of adhesions". These adhesions were
wrapped around my bowels, ovaries,
uterus, pelvic floor and anywhere else they
could adhere. I had never heard of them
before and was told very little about them.
After the surgery, I was sent home and
reassured that I would be fine now. But months
later, I began to feel the same awful
pains of tearing and pulling and ripping.
This time I became so constipated. I called
my doctor and he gave me a script for pain
meds and told me to up my fiber and wait
a couple of months to see if the pain went
away. Five weeks had passed and I still
couldn't have a BM. I had called my doctor
repeatedly and he said that I must be a
"little constipated is all that is causing
the pain" and wanted me to try some over the
counter stool softeners. I had tried everything
that he told me to do. Still nothing. He
finally told me to get on Percocet and wait
a couple of months to see if the pain would
go away. Meanwhile, I still couldn't have
a BM and was rushed to the emergency with
an enstrangled bowel. I just about had to
have a colostomy bag put in because of the
adhesions being so bad. That was the first
time that my doctor had even remotely told
me that I indeed had an adhesion problem and
still I didn't know the severity. It was
only 6 months more until I was in surgery
again, this time for my gallbladder to be
removed. I had stones, but what puzzled the
surgeons was that I had massive adhesions
all over my liver and side and had never had
surgery there before. This puzzled them.
Once again, I was semi out of pain and I actually
had several months with very little
pain. It was in August of 2002 that I had
my final surgery. This was the surgery that my
doctors only took an hour to "fix" me as my
reports say and little did I know that it
would be the one that screwed me up for the
rest of my life. After my laporoscopy in
August, I began feeling the burning and tearing
and ripping right after the
surgery...within weeks. This was different
for me. I thought that maybe I had overdone
it and needed to rest more. But as my scars
healed and I rested more, I realized that it
was the adhesions back and this time worse
than I've ever known. I have been to many
doctors, gasteronologists, urologists, obgyns,
endocrinologists, surgeons ...even moved
to a larger city where the doctors have better
knowledge of adhesions and I was told
that I am chronic, there is nothing anyone
can do for me. I will not be able to have any
more surgeries unless it is done by one of
the specialist in Germany. I am in chronic
pain....I can also feel more extreme tearing
and pulling whenever I have to pee. It tears
at my kidneys and sharp pains shoot up around
my ribcage doubling me over most
days. I am now on Oxycontin, Norco and Bextra...that
only relieves the pain
somewhat. I now see a doctor at a pain center
every couple of weeks, trying to get some
relief for my pain that has become a nightmare.
I am trying to lead a normal life
without the use of narcotics, but it's a trade
off between feeling the pain all day long or
feeling the side effects of the pain medications.
I am newly engaged and my fiancé has
been so supportive. There have been times
that I have thought about giving up and just
quitting but my lover gives me hope to hang
on and this site has been a source of hope
for me as well. Until November, I thought
that I suffered alone. I never knew another
soul to have this horrid disease. I met some
doctors in Boise that actually know about
this disease and have advised against any
future surgeries unless I have a specialist in
the field. Since there are only about 4 known
in the world I am trying desperately to
get to Germany to have this one last surgery
in hopes that I will be able to lead a
normal life and take care of my family without
pain. I'm getting married in June of
2003 and I would like to be able to walk down
the isle without pain. UPDATE: I was
told that I needed a hysterectomy due to heavy
bleeding and massive cramping. I
cannot have one due to forming adhesions.
So what my doctors did is the Nova Sure
procedure on January 24, 2003. This was a
very painful procedure, but at least I won't
have to deal with any new adhesions probably.
And I won't have the cramping and
awful bleeding each month anymore. I am now
recovering two days later, from the
Nova Sure Procedure and am feeling much better.
I still have the day to day adhesion
pain, but with God's help, I will get to Germany
one of these days and get the surgery
that I so long to have. I am thankful that
I have found this site and made some new
friends. I am not alone now and I have women
(and men) that I can talk to that go
thru the same things that I do on a daily
basis. This keeps me sane and makes me keep
trying and hanging on to this glimmer of hope
that some day the Spray-Gel will come
to the United States if I am unable to go
to Germany.
Home
- Tonya's
Story - How
to Help - Thanks
Page
|